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Welcome to our guestbook! Please take the time to share your experiences, knowledge, ideas, helpful links, recipes, foods, or anything else with others. Or read other entries below to get new ideas.

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(19)
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(19) Renee Marsh
Thu, 23 April 2015 21:47:17 +0000

Thank you for developing this site, it's been extremely helpful to us.

(18) mrs.moechtar
Thu, 4 September 2014 00:06:48 +0000

Hello! i came across your website and found it very useful! like you might expect i am a worried mother of a baby with proctocolitis allergy, i don't think it's that common in my country (Indonesia), so there's no one i know, or a forum that discuss the same case as my breastfeeding son.

at two months of age, for the first time i saw a super tiny blood spots on his stool and immediately perform a feces lab test and the result there was no patogen bacteria or amoeba, but the occult blood was positive. the doctor said he's fine (rational use of medicine type of doctor) and around 10 days after that i came back because there's still blood in his stool and she said he's fine she even gave him vaccines.

at 3 months old, his stool still got bloody spots so i decided to visit another doctor to get 3rd opinion (yes 3rd, i didnt mention the first doctor because he gave me medicine so scratch that) and this time, this 3rd doctor said it's proctocolitis allergy because it's been happening for more than 3 weeks, and he's gain weight, active and lots of cooing and smiling when playing.

i have to go on a food challenge of soy&wheat (because since the day he was born i eliminate dairy and egg because at 2 days old, the first doc suspected he has an allergy), 3 weeks has passed and the blood spots still occurs. that's when i came across your website and was shocked to see that corn and cereal multigrains can be a culprit too. because i eat lots of corn and had some sesame seed, sunflower seed and flaxseed.

now it's been around 40 days the blood spots occurs, my question to you as someone who's been there and been helping people,
-is that how long does this blood spots occurs?(i read your paragraph saying it can occurs from 1 day to 5 months, does that mean the blood spots can occur that long?)
-i know it's possible to have multiple allergy(unfortunately i couldn't open the link of a blogger mom who posted about this on your links page), but exactly how many food allergy can a person get? i mean i've been eliminating dairy,egg, soy, wheat and now corn and multigrain too but the blood spots are still there. (i read your story on your son's bloody stool quickly goes away and in 2 months he's healthy again) may i ask you how long it took for the blood spots to go away?

thank you so much, your website has been very helpful!

(17) Colin
Tue, 20 May 2014 08:31:27 +0000

Hi Guys,

I was reading your useful links page at http://infantproctocolitis.org/care-givers/resources-cg/ and noticed a dead link if you could pass this email on to the webmaster I am sure they could fix it:

Current dead links:

http://www.milkfreekids.com/p/dairy-free-foods.html
http://archive.supermarketguru.com/allergies/form.cfm?ObjectID=51549


I also noticed that you did not have Bacarel Express listed on there,
As they are a major supplier and are well known for milk proteins,casein and dehydrated products I was bit shocked that they were not listed. If you get time perhaps you should add them there URL is http://www.bacarelexpress.co.uk it should help other readers out as well.

(16) Janet Waters MS RD LD IBCLC RLC
Wed, 5 March 2014 14:48:12 +0000

Thanks for sharing this website with me through PEDIATRIC NUTRITION DPG. Is is just what I was looking for.


(15) Dago
Thu, 20 February 2014 16:02:17 +0000

My nephew just got that diagnostic after a colonoscopy, he has been suffering for 3 months of bloody stools and bloated abdomen. He is only 5 months.

Thanks for this helpful information

(14) Marcia Wilzbacher
Thu, 23 January 2014 02:12:37 +0000

Dr. Englash

Daughter-in-law Catherine Wilzbacher so thrilled she found you. Thank you for helping our little Gwen.



(13) Marty Polzin
Mon, 11 November 2013 17:14:58 +0000

Thank you so much for providing this wonderful information. I look forward to hearing your talk 11/19 in Madison.
I am a IBCLC,RLC,LPN @ Appleton Medical Center.

(12) ann
Fri, 8 November 2013 21:51:34 +0000

My son suffered from " colic" "reflux" and bloody mucus stools and severe pain. When eliminating soy and dairy didn't fix it I kept eliminating more and more and finally went on total elimination diet living on turkey and zucchini for two weeks. I finally figured out he is intolerant to milk, soy, eggs, gluten, oats, nuts, seeds, beans, oats, and CORN. With corn being the worst and the hardest to eliminate because its not always listed. I've kept up this diet over a year while still breastfeeding and the changes in my son are nothing short of miraculous. No spit up no pain, developmental delays are gone and normal poop! Its hard to keep him from eating stray crumbs occasionally and he pays for it with vomiting and diarrhea but its so great to be at a place where he's healthy. Corn intolerance surprised me the most but it is horrible for him.

(11) Janet RN, WHNP, IBCLC
Fri, 8 November 2013 05:54:42 +0000

I was so amazed to discover this wonderful site. My nephew and his beautiful wife just had their baby Aurora in Duluth, who has this exact problem. They are so loving, and have been dealing with their baby's pain and discomfort, all the while breastfeeding, and also pumping to keep milk supply up. I know mom's off dairy, soy, wheat, etc. not. I referred them to this site in hopes they'll gain some more insight and maybe a few good tips. Thank you for your timely appearance in my life.

(10) Frances CMPA Support
Mon, 28 October 2013 17:04:20 +0000

Just wanted to say well done on a great site! It is lovely that you've told it from the Mother's perspective having been through AP yourself twice. So many parents/carers of children with gastrointestinal allergic reactions to Dairy & Soya feel so very overwhelmed, isolated, not listened to & at a total loss of what to do when their infants present with these symptoms. It really is exhausting to live through & you feel at a total loss what to do to help ease your babies obvious pain/discomfort. Diagnosis here in the UK is often delayed & many "first line" medics still don't believe that food proteins can cause harm when passed through breast milk!

Our small UK based charity Cow's Milk Protein Allergy Support (CMPA Support) has a thriving & growing community of members with both dairy & soya IgE & Non-IgE allergic infants & children (plus many with other food allergies/intolerances & associated health problems including reflux & eczema). I have added your website to our sites Resources page :-)

www.CMPAsupport.org.uk
Facebook: https://www.facebook.com/CowsMilkProteinAllergySupport

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